December 6th 2008 not only marked the official launch of the new foundation, Foundation for Angelman Syndrome Therapeutics(“FAST”), but also became a night to remember and a highlight in the lives of so many parents, families and colleagues touched by an individual with Angelman Syndrome (“AS”). Not only did the event exceed our expectations, but the response of those who attended was one of warmth, gratitude and a new found sense of hope for a cure. What is even more amazing about this evening, is that for many of the parents, it was their very first evening out to an adult event since becoming parents of a child with AS. The ballroom was full of emotion, excitement and gratitude for bringing so many together to share in the new vision of finding a cure. This night marks a start of a new venture and everyone who attended will be connected for life. The board members of FAST were touched by the feedback and success of the evening. Proceeds raised for research exceeded $28,000.00.
One of the highlights of the evening for so many was Dr. Edwin Weeber, who gave a great speech telling stories about how he and his colleague Dr. Ype Elgersma came up with the idea to com- bine the AS mouse with the CamKII mutant, the rescue. Ed was greeted with a standing ovation by the entire room. He shared his vision and dedication to the mission of helping find a cure for Angelman Syndrome, which brought tears and a great deal of hope to so many who have been without for so long.
* Excerpt from Melissa Elkins, 2008 Board Member